Sending you well wishes from Midwest USA …so impressed with your positive outlook and initiative to conquer lymphoma

my profession takes me to cancer clinics in a territory I cover as I promote diff medications for Chemo care here in USA

I am impressed with the quality of care that the infusion nurses provide patients and the bond they foster with patients facing cancer and chemo – true angels

if I may ask, what type of chemo regimen did you face? abvd, r-chop?
how long did you sit in chemo chair for infusion therapy?

Happy Holidays
Peace and Health to you

I’m not sure but I did have surgery (under general anaesthetic) in my neck so that they could definitively say it was Hodgkin’s Lymphoma.

I had 12 chemo sessions in total ending on December 16th. Half-way through they were able to stop infusion of one drug as my September scan showed I was in the clear. The chemo sessions typically lasted 4 hours in total. I’ve had my final weekly blood test taken at my doctor’s practice today. Also, I can stop taking one of the cancer drugs this Friday.

All in all I’m in good spirits – my weight has gone up and I now await a further scan on January 19th followed by an appointment with the Consultant Haemotologist on the 31st.

I’m feeling fine (side effects of the chemo were minimal but I’m glad that it is over now), I have more energy and feel stronger. The Delirium I suffered in hospital was the worst part; I was psychotic and my memory was playing tricks on me. Glad that I’m mentally well again, feeling sharp and no sign of the Winter blues.

The care I received was exemplary: I have a clinical haemotology nurse who phones most days as I’m still taking my temperature daily but, thankfully, I’ve not had so much as a cold since I left hospital in August.

An update: Tomorrow I go for my final scan then see the Consultant on the 31st where I hope and expect to hear good news.

Luckily, I have avoided any colds over the Winter when there has been a 3-week long heavy cold doing the rounds amongst people. Also, I’ve started reflexology sessions which seem to have helped my sore back. They are also about healing in a more holistic approach. It could be placebo, but whatever works is to my mind a good thing.

I’ve been less active in internet forums, and mindlessly browsing in general; I have been reading a lot and listening to music which I both enjoy. Feeling positive is a good place to be.

My weight has gradually gone up – chemo was keeping it pretty low (at one point in hospital I was around 63KG but am now up to 150lb, approaching 70KG) – and I can now eat pretty much whatever I want – lots of toast but with healthy bread.

I’ll update again in February. I haven’t really been keeping up with Z news but I do like the true crime podcast Sword and Scale – it’s pretty compelling listening.

Keep feeling positive & get healthy & cured!

Zam*

Hope you get some positive news D9, positive thoughts for you!

Well it’s been nearly a year since I was diagnosed – I can scarcely remember much of last Summer as I was in hospital from May to the end of August and half that time I was delirious.

I’m doing fine – cancer is still in remission and I have my next appointment at the out-patient’s clinic on June 22nd for a check-up.

My weight has all come back and I’m interested in things like books, films and podcasts etc. It got very hot for Edinburgh (81F) on Friday (the record is 88F) but tomorrow’s maximum will just be 55. I have to be careful in the sun so tend to wear hats.

Hope everyone on here is well and continuing their sleuthing.

Well it’s been nearly a year since I was diagnosed – I can scarcely remember much of last Summer as I was in hospital from May to the end of August and half that time I was delirious.

I’m doing fine – cancer is still in remission and I have my next appointment at the out-patient’s clinic on June 22nd for a check-up.

My weight has all come back and I’m interested in things like books, films and podcasts etc. It got very hot for Edinburgh (81F) on Friday (the record is 88F) but tomorrow’s maximum will just be 55. I have to be careful in the sun so tend to wear hats.

Hope everyone on here is well and continuing their sleuthing.

Good to hear, man! Glad you are doing better.

Great news ..keep up the good fight.. I have been to your beautiful city .. Enjoy the great weather.

Good and wonderful to hear you are feeling better. Your positive attitude is inspiring. Thank you for sharing.

I too am glad to hear you are doing well!

Awesome 9 !

I remember your first post on this subject, and I’m Happy to hear the wonderful news!
Zam*

Sadly, my cancer has returned; I get the results of the biopsy on Thursday at noon.

It started off with Carpel Tunnal’s syndrome – my arms were so weak I could barely dress my top half. Fast forward to an MRI scan showing a tumerous mass at the top of my spine.

So I was in hospital for 10 days, with a fair bit of worrry. Let out 48 hours ago now and it’s so nice to be back home amongst my creature comforts. They gave me radiotherapy in hospital (6 consecutive days) plus large doses of steroids and the list of medications I must take, decrease etc. is lengthy.

I hold onto hope for Thursday but dread bad news; whichever it is I must be prepared to accept it.

Awwww D9 I’m sorry to hear that. Keep hoping and thank you for taking the time to inform us.

I sure hope the news is better than you think it will be. Sorry to hear of your struggles…keep fighting!

I finally get the results of the biopsy on Monday coming at Noon – I’m really hoping it’s another Lymphoma (although in an unusual place), as that way it will be treatable.

Meanwhile life goes on – I’m going to be watching tomorrow’s Scotland vs. England rugby, reading books, catching up on podcasts and doing a little cooking.